Malattie rare Articolo scientifico Understanding haemophilia caregiver burden: does appraisal buffer the impact of haemophilia on caregivers over time? 1 min ● 08.01.2021 The present work investigated haemophilia caregiver and patient characteristics associated with change in negative and positive aspects of caregiving
Malattie rare Articolo scientifico Acupuncture as a therapeutic resource for treatment of chronic pain in people with haemophilia 1 min ● 08.01.2021 Chronic pain is common in individuals with severe and moderate haemophilia who did not receive prophylaxis during childhood
Malattie rare Articolo scientifico Physiotherapy interventions for pain management in haemophilia: A systematic review 1 min ● 08.01.2021 Approximately 35%-50% of people with haemophilia (PWH) report living with chronic musculoskeletal pain
Malattie rare Articolo scientifico Implantable venous access devices in children with severe hemophilia: a tertiary pediatric institutional experience 2 min ● 08.01.2021 Clotting factor replacement forms the pillar of treatment for children with hemophilia
Malattie rare Articolo scientifico Gastrointestinal bleeding from angiodysplasia in von Willebrand disease: improved diagnosis and outcome prediction using… 1 min ● 27.11.2020 Despite a high prevalence of angiodysplasia, no specific guidelines are available for the modalities of endoscopic exploration of GI-bleeding in VWD
Malattie rare Articolo scientifico The perspectives of adolescents and young adults on adherence to prophylaxis in hemophilia: a qualitative study 1 min ● 27.11.2020 Adolescents and young adults (AYAs) with severe hemophilia use prophylaxis that requires a high level of adherence
Malattie rare Articolo scientifico Patient and caregiver preferences for haemophilia A treatments: A discrete choice experiment 1 min ● 22.10.2020 Long-acting products are changing the haemophilia A treatment landscape by giving patients and caregivers treatment options with varying product...
Malattie rare Articolo scientifico 3D gait analysis, haemophilia joint health score, leg muscle laterality and biomarkers of joint damage: A… 1 min ● 22.10.2020 3D gait analysis has been proposed as a reproducible and valid method to assess abnormal gait patterns and to monitor disease progression in patients...